Master in Health Sciences Unilu
Department Health Sciences and Health Policy, Frohburgstrasse 3, 6002 Luzern, Switzerland
The Patient's Voice in Clinical Research – An Academic Point of View
Managing Director, Swiss Clinical Trial Organisation
Does academia integrate the patient’s voice? How does it do it and what are the challenges to do so? This talk presents the current situation in Switzerland and showcases the Swiss general consent for the reuse of patient data and biological samples –the tightrope walk between too much and not enough information–, and what transparency in clinical research means and how far it is implemented.